(Like so many pieces of laundry, morning thoughts aren’t usually organized.)
April 20 – 30, 2019
Living with Parkinson’s
Phyllis and Sam Turner
APDA: American Parkinson Disease Association
CH: Cynthia Holmes, Ph.D. Neurology
CPAP: Continuous Positive Airway Pressure mask (for Sleep Apnea).
DBS: Deep Brain Stimulation (much improved since Michael J. Fox!)
HEH: Happily Ever After!
HS: Harvey Stanbrough Pro-writer and mentor(http://harveystanbrough.com)
IBS: Irritable Bowel Syndrome (often associated with PD)
MJFF: Michael J. Fox Foundation
PSG: Parkinson’s Support Group(s)
PD: Parkinson’s Disease
PMD: PARKINSON & Movement Disorder Alliance
PJ: Phyllis – my wife: referred to as SWOMBO (She-Who-Must-Be-Obeyed) A contributor and #1 editor.
PT: Personal trainer Tresha, including daily in-home exercise assignments for PD
TC: Tai Chi Chuan for balance and body health once a week
TCF: The Compassionate Friends (For parents who have experienced the death of a child or sibling.)
WIP: Work in Progress (32º North) I write every chance I get. Writing is my vacation!
YISKA: Navajo for Darkness has passed. (also the name of Sara’s Navajo Sheepdog who barks in Navajo!)
Phyllis and I spent a delightful three hours visiting with Julie and Chris.(I know: I should have had Zack take pictures of the adults eating the waffles and hot-cross buns.) Next time, I’ll have him be our photographer.
1315: Phyllis is “practicing” sleeping on her new foam insert on our bed. She must be comfortable when we get to Flagstaff in two weeks.
I have two doctor appointments, today. One at 0900 focusing on my IBS DIET, and another at 1345 for radiation.
YISKA! The early (goldfinch) gets the Niger seed! Saw these two little guys before Sunrise. Took this through our North Room window.
04.23.19: Costco for monthly supplies. We are reading HOME by Julie Andrews to each other. PJ slept in our bed until 0145, then moved to her chair. Cramps and back pain is the problem.
04.24.19: Tresha worked both of us. I’m having balance issues. PJ got dizzy. A new blood pressure prescription could have something to do with this. She stopped her med. Called the doctor. (Took three days for a reply from him.) He prescribed ½ a dose.
I practiced outside for 6 ends; then four more ends inside at the club.
Everything I did with Tresha this morning was for balance and PD. The archery practice is for balance and (PD) strength.
Oh, my gosh! It’s 1730, and I haven’t started dinner. Maybe PJ will help with it this evening. (Ha!) A chicken/cheese wrap can be made in ten minutes. Forgot to add the vegetables. Watched Alfie Boe sing Bring Him Home and other selections, last evening. What a voice! (He’s in the hospital.)
04.25.19: Tai Chi at 1000 to 1100. (where we both work on our balance and breathing) PJ works from a chair when she gets tired. (everything is in slow motion) 1400: Radiation. In between, we had lunch at the Bisbee Breakfast Club. 1600: Watched CBS Sunday Morning (only four days late) and enjoyed all the clips. PJ read another chapter of HOME to us. We were in bed by 2100.
04.26.19: 0600: 64º as I attached another piece on the pot. We enjoy our back patio with the birds and the early morning light. First-night bloomers on this day.
04.27.19: The Main event of the day: Aladdin at the Gaslight Youth Theatre where granddaughter Sabrina (left) plays Princess Jasmine
As promised to Sheila: The Bougainvillea on the south-east corner hides one of two 850-gallon rain tanks.
In the meantime: I’ve been reading Lt. Cmdr. James A. Michener’s Tales of the South Pacific. He’s journaling! It could have been a Blog, today! Our Marine MGySgt letters from the South Pacific would have made riveting journals except so much of the words were blacked out from the sensor. However, I doubt that many of today’s blogs/journals would rate the Pulitzer Prize as Michener did.
04.28.19: Made it to Church today! Sabino Canyon Rd. and River Road is clear. We went out to lunch with Chris, Julie, Sabrina, and Zack. Celebrating Julie’s Birthday. We haven’t been to OINK in a couple of years! Zack will get better with his photos.
Lesson #1: Don’t shoot into the window light.
I tried to include a “click” to hear 30 seconds of Ethan’s Band Concert at the bottom of the poem. Haven’t been able to work it, yet.
They played another, longer piece. Yiddish Dances (24 minutes) that I put on my cell but can’t load it anywhere. (probably a good thing) You may not want to hear anything that long. However, here’s the YouTube site if you’d like to hear the type of music this high school can play. I couldn’t find one with pictures.:
Trust me: They sounded as good as this symphonic rendition. The crowd gave them a Standing Ovation 04.29.19: Cloudy and 70º Today is filled with activities. Concluding with Ethan’s Band concert!
from Piccillo to Tuba
from Trumpet to Trombone
from Saxophone to Oboe
from Timpani to snare
each member is
They can feel it
the audience feels it
your body knows it
playing as one
the first notes sound
the skin prickles
the hair follicles
Under The Double Eagle