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(Like so many pieces of laundry, morning thoughts aren’t usually organized.)

August 18-25,  2019

Living with Parkinson’s

Phyllis & Sam Turner ©2019

about.me/tobecontinuedbysam

Codes:
ALOHA: Adult Loss of Hearing Association
APDA: American Parkinson Disease Association
BBC: Bisbee Breakfast Club
BSC: Bristol Stool Chart
CH: Cynthia Holmes, Ph.D. Neurology
CPAP: Continuous Positive Airway Pressure mask (for Sleep Apnea).
DBS: Deep Brain Stimulation (much improved since Michael J. Fox!)
HEH: Happily Ever After!
HOH: Hard of Hearing
HS: Harvey Stanbrough Pro-writer and mentor (http://harveystanbrough.com)
IBS: Irritable Bowel Syndrome (often associated with PD)
MJFF: Michael J. Fox Foundation
PSG: Parkinson’s Support Group(s)
PD: Parkinson’s Disease
PMD: PARKINSON & Movement Disorder Alliance
P.J.: Phyllis – my wife: SWOMBO (She-Who-Must-Be-Obeyed) A contributor and #1 editor.
PT: Personal trainer Tresha,  including daily in-home exercise assignments for PD
RWA: Romance Writers of America
TAODW: The Art of Dying Well-A practical Guide to a Good End of Life, by Katy Butler
TCF: The Compassionate Friends (For parents who have experienced the death of a child or sibling.)
WIP: Work in Progress (Hiker Man) or (32º North) Title undecided. Writing is my vacation!
YISKA: Navajo for Darkness has passed.  (Also the name of a Navajo Border Collie who barks in Navajo!)

WE GET LETTERS:

 From Karen G.

JILLIAN’S JOURNEY is a page-turner that keeps you wanting to know what will happen next in Jillian’s life.  I thoroughly enjoyed this book and found myself wanting more.  Thank you, Sam and P.J. for this wonderful read.

Thanks, Karen: PJ and I appreciate your help on Hal’s Chapter (page138).  It’s comfortable to know that you, as a PT, could advise us.

NOTE: Parkinson’s hasn’t totally engulfed our lives (yet). Some of you know that we are writers. A few years ago, we crossed over from non-fiction to ROMANCE! Karen is referring to our third novel.

I have Harvey to thank for his suggestions on the first two pages of Jillian’s Journey. They gave the opening just the POW that was needed to make our book a page-turner. Check out his sites:

(I only write when I’m inspired, so I see to it that I’m inspired every morning at 3 a.m.) HS

http://harveystanbrough.com — my author website

http://hestanbrough.com — my instructive Daily Journal

Have fun counting all the books this man has written.

Speaking of novels: In June, I started Novel #3, (Thirty-two Degrees North). I set it aside because of life interruptions. Two weeks ago, I found myself with an open block of time on Sunday afternoon, and a new story popped in my head. (I almost typed pooped!) and I put down 1600 words. It may become part of 32º North, or it may become #4 in the series. Or, it may become a short story.  I had to write it when the image came to me. Like dreams, ideas can disappear as quickly as they arrive in my brain. Sometimes, the views are mear whistle-stops rushing on their way to an unknown destination. I have to jump on the caboose if I want to follow the excitement.

I made another variety of stir-fry this evening and added salmon patties for the meat. We ate dinner as we watched CBS-Sunday Morning (in the evening). It was a Special Program about Florence and the surrounding country.

08.19.19: 0500: Only 80º this morning

From Len Hill:  (He and I were roommates in high school. He became a Feature Editor for the European version of The Stars and Stripes. He lives six months in Paris and six months in Darmstadt. -Tough life, eh?)

Amazing journal . . .  great way for me to get a vicarious insight in your life. Thank you for sharing .

About Parkinson’s: The symptoms come and go, like the tide. At the moment, the tide is out, and I’m typing without the use of DRAGON.  My fingers aren’t sticking. As the day wears on, so will my body.  Last night my left leg gave me trouble. This morning, everything is fine.

A Western Fence Lizard (maybe) on our Acacia tree in the North yard. Our yard has a wide variety of lizards.  I was only prepared with the Motorola while eating breakfast. Next time I’ll use the Hasabland telescopic.

Archery League this evening. I shot 152/300. I have mornings free this week (sort of). If I can shoot before 0700, I’ll start practice shooting at my gum wrapper again. Watched the news and read my book until 2200.  PJ beat me to bed.

08.20.19: 0445: Up and answering mail and waiting for “Yiska” to practice shooting. 0600 -0630: shot at gum wrappers for 30 arrows @10 and 20 yards (depending on the Sun). 20 yards shooting west; 10 yards shooting east. Got the wrapper twice. I’ll practice again at the Club after 1000. Now to “practice” writing for thirty minutes.  0725: I just tested myself for twenty minutes. I wondered how many words I would put down in 20 minutes. 176 words. It could have been more, but I was writing awkward dialogue. Since my protagonist (B. A. Slaughter AKA Hiker Man) is just coming out of a delirious state as a result of a concussion(or stroke). He finds himself in a strange environment, not being used to the inside of a Navajo hogan. He doesn’t know the people, but they know him. For you that have read our two novels in the series, you know who he is, too.

This writing exercise is getting exciting (for me). I’ll get back to M.M. later. 0900: Lawrence came by and set up the soundbar for the TV. It worked this time.

1300: Back from 30-minutes of target practice at the club. Putting the arrows in the red circle and a couple in the yellow. Still not smooth. Home and PJ fixed another colorful salad.  We leave in 15minutes to pick up Sharon for her first visit to the PD support group.

1400: Excellent PD Support Group! As usual,  caregivers and PD people split into two rooms. We had about 16 people in the big room. In PJs group, the discussion centered on dementia with Parkinson’s. One woman told of losing her husband in the grocery store. He wasn’t pushing the basket following her. A lady came up and said, “Your husband put these potatoes in my basket.”

Most of the caregivers were concerned about partners who shouldn’t be driving.

Our group focused on the side effects of various medications.  Home and relaxed, read, watched the news and went to bed by 2115.

08.21.19: 2019:  0600: morning (before Sunrise) food bar wrapper practice. Now, all I need to do is duplicate this in the League. 1345-1430: shooting practice at the club (it has A/C) So far, I haven’t repeated this series of shots at the club.–Almost, though: I got 2 out of 3 in the center this afternoon.  Supposed to be 107º today.  As soon as the Sun rises, we stay inside.

LETTERS AGAIN: From Rosie: I loved Maytag Moments this week! And Jeanne Robertson is one of my favorites – thanks for adding that at the end.

Agreed: We haven’t found one yet, that doesn’t make us laugh. Sam

Got a call from a good friend of ours in California (Bette B.) who said she had some trouble understanding the Maytag in Maytag Moments for a few issues. She grew up in a family where her father sold General Electric products.

Well, of course, she would: Washing Machine Moments seems a bit too long for a title. Good to hear from you, Bette.  We look forward to seeing you in Tucson in a couple of weeks.  Have a safe flight.

08.22.19: 0530: Waiting for Yiska. I’m using Dragon this morning. The fingers just aren’t working well today. Is not light enough to practice shooting, so I’ll answer a few emails until it gets brighter. 0600: practiced archery for 30 minutes.

0900: Spent an hour talking to Margaret Ann in Green Valley about her writing routine. This lady is busy.  (maa8253297@gmail.com or 520-648-8253.)

1045: Lolly A. stopped by, and we enjoyed the Brett Bench for a few moments. (The Sun is shifted just enough that it is in the shade.)  Her husband, John also has PD. We discussed changes in our driving habits. PJ and I try to avoid nighttime driving, if at all possible. She left with this comment: I had a wonderful visit with you both.  I love every single special touch in your house and garden … all with such meaning … and a peaceful feeling.  Thank you, friends, for such a welcome break in a hot and busy day.”

Note to Brett and Corinna: The Brett Bench is being put to good use, even in the heat of the day. Thank you! (Also, I’m hydrating the Jade plant each evening during this heat spell.)

1130: We met with our TCF friends Carl and Guy at Little Anthony’s for cheese quesadillas. We have enough leftovers for two more meals.

1300: I spent an hour searching YouTube trying to find the Grand March from Aida performed by the Houston Opera Company in 1987. Finally found it but I couldn’t fast-forward it for some reason, and we had to wait through Act One just to get to the Grand March. It’s one of the best performances I’ve ever seen. (I streamed it on my computer the next day. It was much easier to locate.)

1700: We watched the news, and I finished The Art of Dying Well by Katy Butler. There is much helpful information to gather in this book. For instance: While you may have a DNR (Do Not Resuscitate) on your refrigerator door, if you call 911 and EMT arrives, they may ignore the sign (if they even see it) because they are trained to keep you alive. {I remember when Bill Roberts collapsed in the dining room at Cascades. Had his wife, Ann, not been there to insist that EMT not resuscitate him, they would have attempted it.}  Google POLST AND MOLST – Arizona doesn’t have this yet.

08.23.19. 0530: Didn’t shoot this morning. Instead, we walked 3/4 Park Place Mall 1500 steps. Stopped by Sprouts to buy milk and fruit. Searched and found(!) some old, 1992 records.

1830: 181/300 Practice helps!  Now, to do better, Monday when the score counts.

08.24.19:  0900:  RWA today. One segment of the presentation was focused on writing erotica. Ed and I were indeed in the minority with 26 women present.

As it turns out, there is an excellent market within the Amish and Mennonite communities for romance books. Not much for e-books or audio as you might guess.

08.25.19: A letter from a high school friend (Peggy S.) who is facing changes in her life.

I was going through some old pictures to put them in an album the other day and came upon a bunch from my Wasatch days. Such a long time ago and yet the memories come flooding back as if no time has passed at all. As I looked at pictures of old friends, I had to wonder how many of them are still around and how many have already crossed the great divide. I wish I had done a better job of keeping track of them.

I appreciate receiving your “Maytag Moments,” Sam. I’m sorry that you are having to battle Parkinson’s Disease. One of my uncles fought that battle too, so I know a bit about the struggle. It sounds as if you aren’t giving up without a fight. I admire you for that. I am still managing to keep up my house and yard, but I realize that the time is coming when I will have to make a change. I will probably eventually move to Virginia to be nearer to my one remaining brother. I will go to a senior citizen community, but I’m not ready yet.
Leonard, I hope that all is well with you. I think of you often, and I deeply regret that there seems to be so much anti-Jewish sentiment in the world today. I never thought that I would live to see that again.

I keep you all in my prayers and hope that you stay safe and as well as possible.

Peggy

Sam’s response:

 MEMORIES

I remember one evening:
You were my first date
I took you to the
Junior-Senior Winter Ball
I danced with you.
Innocent of our futures
You in a silvery
shimmery gown
slim
thrilling
You danced with me!

I send you blessings of love, Sam

From: Hessel, Eugene

Sunday, August 25, 2019; 1447 EDST

Dear Peggy:

I Agree totally with Sam.

See recent book below,  by my friend and president  of our UCSF MD Class  of 1060 (60th-anniversary next spring!)  John Geyman (Chairman emeritus of Department of Family Practice  at University of Washington, and former editor of two of the leading Family Medicine Journals) , which partly addresses this. I know from a recent personal conversation we had earlier this month,  that he supports end-of-life care at home whenever possible.

I am still practicing and teaching Anesthesia at the University of Kentucky in Lexington.

Gene

Blurred – The Roadrunner didn’t wait around.  He’s on the table behind the top of the chair.

He’ll be back. But will we be ready?

Here’s one taken a year ago.  We keep trying.

08.26.19: Practiced shooting at  0600. It was a cool 80º.  I think I’ll send this out after our Quail Run Writing group on the 27th. Not that you are anxious (Ha!). Many interruptions this week.

Continuing: I find myself with some time to spare this morning. I’ll put it to use and keep on my WIP.

08.27.19: 0600 @20 yards: Why didn’t I do this last night at the League? I only shot 148/300. This shot would have scored about 27/30.  All I’d have to do is repeat this shot ten times. Last night, I actually bounced an arrow off the ceiling! I’d love to blame it on PD, but I know it is a mediocre release on my part.

 

08.27.19: Quail Run Writers:

PAULETTA presented a piece: The Sacred Blue Lake of the Taos Pueblo Nation in New Mexico, where she visited earlier this month.

Sharon: described her impressions of her first experience at a Parkinson’s support group meeting last Tuesday. She sat next to a lady who had similar symptoms, including falling out of bed. I hope she continues visiting this essential support group.

Flo: presented FARETHEEWELL about a teenage friend named Dottie and her memories over the years and a final phone call many years later.

Phyllis (Slocum) Turner: presented her research on four-year-old Francis Slocum, (a distant relative), who was captured by Delaware Indians in 1773. and spent the rest of her seventy-plus years living as an Indian in the Miami Tribe.

Beverly  continues through the twists and turns of Maggie and Marissa. Her story keeps us interested because we argue over whether the two ladies are biologically related even though they don’t know this. (Nor do we. Nor does Bev.) You see, Bev is writing “into the dark,” a method to which I also subscribe. She is letting the characters lead her through their lives.

Sam continues with his story about a delirious hiker who comes upon a Navajo Hogan and finds shelter. The hiker has possibly experienced a stroke either from a fall or extreme dehydration. The first clue we have is his initials inscribed on a sketchbook, B. A. Slaughter. It is possible that this story may become book three of the Blue Slaughter series. Or maybe I will continue with 32° North and insert this story somewhere in that story. We’ll see.

Again, thanks for your responses and encouragement.   You keep us happy. Ah, sorry about the U.of A. opening football game. I wore my socks, hat, and shirt, but it didn’t help one bit.

Blessings to you all.

Sam and Phyllis

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