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(Like so many pieces of laundry, morning thoughts aren’t usually organized.)

May 06 – 20, 2019 Part II

Living with Parkinson’s

Phyllis and Sam Turner

APDA: American Parkinson Disease Association
CH: Cynthia Holmes, Ph.D. Neurology
CPAP: Continuous Positive Airway Pressure mask (for Sleep Apnea).
DBS: Deep Brain Stimulation (much improved since Michael J. Fox!)
HEH: Happily Ever After!
HS: Harvey Stanbrough Pro-writer and mentor(
IBS: Irritable Bowel Syndrome (often associated with PD)
MJFF: Michael J. Fox Foundation
PSG: Parkinson’s Support Group(s)
PD: Parkinson’s Disease
PMD: PARKINSON & Movement Disorder Alliance
PJ: Phyllis – my wife: referred to as SWOMBO (She-Who-Must-Be-Obeyed) A contributor and #1 editor.
PT: Personal trainer Tresha,  including daily in-home exercise assignments for PD
TC: Tai Chi Chuan for balance and body health once a week
TCF: The Compassionate Friends (For parents who have experienced the death of a child or sibling.)
WIP: Work in Progress (32º North)  I write every chance I get.  Writing is my vacation!
YISKA: Navajo for Darkness has passed.  (also the name of Sara’s Navajo Sheepdog who barks in Navajo!)

05.20.19: Yeah, I missed a few days. I was able to catch Corinna across the street pruning her flowers. Yesterday, her family watched the One-Night-Only production of South Pacific (with Reba McEntire) at our house.  We had a family dinner of carry-out from Ba-Dar during Intermission.

05.21.19:This has been an unusual two weeks:  Instead of calling it Living with Parkinson’s, I should just say LIVING. Unrelated problems (I hope) and schedule changes leave me frustrated.  “Please enter your (my) password” is enough to cause a “Day-umm” or other, graphic comment. Suddenly, my computer’s sound went out. Yes, I checked all the plugs. I can dictate to Dragon, but I can’t hear the audio play-back. Umm. I can still read it, though.

I shot 24 arrows with no 10’s. (I only score 10’s.) Oh, I’m on the target; just not in the yellow ten. That was two days ago. Yesterday was cold and windy. Today will be better for shooting.

I take PJ to Body Central at 0930 for another round of PT.

At 1400, we went to the PD support group. We discussed medication and diet. One member was 15 years with PD and had two DBS surgeries. He’s much improved. Talked about the PMD Alliance (movement).  I have more material on this.

Flagstaff again: Four years and Don and Bekah meet again. (Don was my roommate in high school and Pepperdine.  We hiked Grand Canyon, and Rainbow Bridge trails.  He and his wife, Karen, live in Parks, Arizona. She raises medicinal Mullein plants.) Later, Bekah took us on a tour of her lab. Being a retired M.D., Don could talk medical language with her. (Being a retired middle school teacher, I could listen.)

Couldn’t resist this. Yeah, it was cool in Flagstaff.


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