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(Like so many pieces of laundry, morning thoughts  at.)

November 1- 10,  2019

Living with Parkinson’s

Phyllis & Sam Turner ©2019

about.me/tobecontinuedbysam

For archives go to https://tobecontinuedbysam.net/

 

CODES:

ALOHA: Adult Loss of Hearing Association   
APDA: American Parkinson Disease Association
BSC: Bristol Stool Chart
CH: Cynthia Holmes, Ph.D. Neurology  
CPAP: Continuous Positive Airway Pressure mask (for Sleep Apnea).
DBS: Deep Brain Stimulation (much improved since Michael J. Fox!)
HEH: Happily Ever After!
HOH: Hard of Hearing         
HS: Harvey Stanbrough Pro-writer and mentor (http://harveystanbrough.com)
IBS: Irritable Bowel Syndrome (often associated with PD)
LVST: Lee Silverman Voice Technique) has been an effective way to treat the symptoms of impaired voice and swallowing (a PD problem for some) …
MJFF: Michael J. Fox Foundation
NAMASTE: The Spirit within me honors the Spirit within you.
PD: Parkinson’s Disease
PDSG: Parkinson’s Support Group(s)
PMD: PARKINSON & Movement Disorder Alliance
PSP: Progressive Supranuclear Palsy.
P.J.: Phyllis – my wife: SWOMBO (She-Who-Must-Be-Obeyed) A contributor and #1 editor.
PT: Personal trainer Tresha,  including daily in-home exercise assignments for PD
RWA: Romance Writers of America
TAODW: The Art of Dying Well-A practical Guide to a Good End of Life, by Katy Butler
TCF: The Compassionate Friends (For parents who have experienced the death of a child or sibling.)
WIP: Work in Progress (Awakening) or (32º North) Title undecided. Writing is my vacation!
YISKA: Navajo for Darkness has passed.  (Also the name of a Navajo Border Collie who barks in Navajo!)

 

NOVEMBER 01 – RABBIT DAY + TURKEY MONTH!

11.01.19: 0500: RABBIT  RABBIT   RABBIT   RABBIT

HAPPY TO SEE YOU REMEMBERED!

Sunset from our house.

0630 on 11.02.19  Bekah and “little” brother, Ethan. (He’s only six feet tall.) It is so lovely to see a smile on his face. Those two always have smiles.

Ethan warms up for practice.

Speaking of practice, I practiced with my trusty bow and arrows today at the club for the first time since October 4, the end of the last league. I’ve adjusted my anchor point, slightly. I’m getting two out of three in the center. The third one is anybody’s guess. It just takes practice.  I know what I must do: That string must come right down the center of my nose.

CBS Sunday Morning had a segment on Matt Stutzman who, having no arms, shoots with his feet. Check him out on Google. PJ watched it with me.

 Her only comment was, “So, Sam. What’s your excuse?”

Matt sho0ts 300 or 400 arrows a day for practice!  I need to up my practice time. That’s for sure.

On November 2, Julie drove Phyllis and me twenty-four miles south to Corona de Tucson for the monthly Boy Scout dinner. (You saw some pictures of it a couple of Maytags ago) One of the pleasures of the trip is the view. This is looking south toward the Santa Rita Mountains.  They look small in this shot, but they are 9,453 feet at the tallest peak, which is Mount Wrightson.  Yes, you guessed it. There has to be a telescope up there, somewhere.  Mt. Hopkins @8,553  feet is the location of more telescopes. It has the first fully robotic telescopes in the country.  (Tucson is ringed mountains and  telescopes.) From Mt. Hopkins to KittPeak to Mt. Lemmon to Mt. Grahm, this area is a mecca for dark sky viewing.

Our trips usually include sunsets. I’m shooting out the car window at 55MPH, hoping that a tree doesn’t blur the shot at the same moment that I click the shutter.

Fellow Art Teacher (retired), Virginia has her art show, Nov. 2nd, and 3rd.  I was there when they opened. It was packed from the start.  Barbara and son Andy were on one side managing Andy’s productions, and Virginia (with the red hair) was on the  other side.

Click here:  https://photos.app.goo.gl/HK41X65q2SjvSmeM6  to see the rest of the crowds around their booth.

11.05.19 Parkinson’s Lecture: carbidopa/levodopa enteral suspension. A possible alternative to DBS is part of the monthly Parkinson’s disease education series on Tuesday, November 5, 2019, from 2 o’clock to 330. Topic: Overview on Duopa Therapy and Q&A about all PD Medications.

Presented by Maria Christina Ospina, MD – Movement Disorders Neurologist. Today’s presentation demonstrated the latest development in a unit that injects the medication directly into the intestines. It works somewhat like a diabetes pump. The advantage is, you may not have to have DBS. Dr. Ospina presented this alternative in a forthright, personal manner, answering questions as they arose. This is leading-edge development.

11.06.19: 0740: Dim Double Rainbow looking west from our PT club. It was fading by the time I got this shot.

While searching through my files, I discovered a clip that I was looking for three weeks ago. Welcome to the Maytag washing machine, where this was a piece that should’ve been pulled out some time ago. The photographer (me) held the camera (cell) vertical when it should have been horizontal.  I straightened it out after a few seconds.  Enjoy.  A clip of our granddaughter (13-year-old Sabrina) singing in the youth theater You Ain’t Nothin’ But a Werewolf!  It starts sideways but levels out partway through.  https://photos.app.goo.gl/kRtDERWJ2vn977ie9

11.07.19: 0500: Last night, while PJ watched THE VOICE, I attended the El Gheko Neighborhood meeting on qualifying our area (Kingston Knolls) within the National Register of Historic Places. The first requirement is the house must be over fifty years old. Ours qualifies.  Why do this? Our property taxes would be reduced by 50%. The process of qualifying takes from three to five years and requires some financial input by the homeowners. There are many “hoops” to pass through, but it is possible.

Because my father was the station agent, I lived in an apartment for seventeen years that is listed in the National Register. See this site:

https://en.wikipedia.org/wiki/Grand_Canyon_Depot

I used to think that the distinction was because of my bedroom!

As the rainbow indicates change, we were treated to a series of light rain showers yesterday morning. Today is a cool 60º with an overcast sky.  PJ and I wound up walking in Park Place Mall.  No, we didn’t buy anything.  We walked through the new entertainment games where Sears used to reside. It even has bowling alleys.

But the noise.  Think of Texas Roadhouse times five!  The kids will love it.

We had lunch with Carl and Guy at Lil’ Anthony’s.

PD: Our lives seem like a ho-hum routine, doesn’t it? But for me, it’s been a constant change of routine. Wake up at 0100 and stay awake for an hour or so; wake up again at  0500 or is 0600 and be ready for sleep at 1300. Many people with Parkinson’s experience shorter periods of sleeplessness. One activity that seems to help is using the morning sunrise as a physical clock for my body. (I didn’t discover this; Dr. Cynthia Holmes discussed it to some extent at a couple of our PDSG meetings. She also talked about blue and yellow light and how that affected the brain. Neither of us seems to have as much energy as we used to. I’m not willing to blame it on my age. I need to up my exercise time.

We watched another episode of Doc Martin.

11.08.19: 0630: PJ is up with me in preparation for my 8 o’clock visit to Dr. Hutchison, podiatrist. 0759: We made it with one minute to spare driving with early morning traffic from Broadway & Kolb to the Camp Lowell medical Plaza at Swan and Camp Lowell. It was a follow-up check on the surgery done in September. My toe looks and feels just fine.

Afterward, I took her to the Bisbee Breakfast Club for a change from hot oatmeal to poached eggs and well-done bacon. SWOMBO is a happy camper! She seldom gets up with me. I generally let her sleep until she wakes up. But I feel more comfortable when she is riding “shotgun”with me. The two of us watch out for each other in traffic. It’s a good safety measure. Speaking of safety, we are careful about steps and curbs, making sure whenever possible that we have something or someone to hold onto. The days of just bounding up and down steps are long gone.

Later, I took the telescope battery to Batteries Plus to have it checked. I haven’t used it in more than a year. I want to get everything ready for the Mercury transit of the sun on 11 November. Hopefully, we’ll be able to set up at Julie’s place so that Zachary and Sabrina can learn how to use the telescope.

My plan is to donate my 8-inch Schmidt–Cassegrain Celestron-2000 to the Gregory School, where they attend classes.  

11.09.19: 0500:I  spent the morning collecting all the equipment for the telescope, sorting through old material. I think it’s ready for Monday’s transit.

We put 2100 steps walking in Udall park. Even at 10 o’clock, it was quite pleasant relaxed walking. I would like to do that each morning. Of course, that won’t happen every day. We had roasted chicken sandwiches at Culver’s in the evening. We skipped the news and watched the first act of the Broadway revival of The King and I.

11.10.19: 0600: At 0800, we will meet with Kathy and Dick for breakfast.  Yes, they are back in town. I had my first drink of kale. I kept feeling like I was drinking grass! It grew on me, though. As breakfast went on, I kept drinking it. ”Baaaaaaa” seems to be the only side effect. “Baaaa.”

WHO CAN RESIST A PILE OF LEAVES? In Tucson, one might be hard-pressed to find enough leaves to make an umbrella fort, as these two young ladies did. You may remember that they lived across the street from us. They now live in Oregon. There’s no cactus up there. Just leaves. That’s all they needed: leaves and a little imagination from Helena and Gailian. 

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