(Like so many pieces of laundry, morning thoughts.)
November 25-30, 2019
Living with Parkinson’s
Phyllis & Sam Turner ©2019
For archives go to https://tobecontinuedbysam.net/
ALOHA: Adult Loss of Hearing Association
APDA: American Parkinson Disease Association
BSC: Bristol Stool Chart
CH: Cynthia Holmes, Ph.D. Neurology
CPAP: Continuous Positive Airway Pressure mask (for Sleep Apnea).
DBS: Deep Brain Stimulation (much improved since Michael J. Fox!)
HEH: Happily Ever After!
HOH: Hard of Hearing
HS: Harvey Stanbrough Pro-writer and mentor (http://harveystanbrough.com)
IBS: Irritable Bowel Syndrome (often associated with PD)
LVST: Lee Silverman Voice Technique) has been an effective way to treat the symptoms of impaired voice and swallowing (a PD problem for some) …
MJFF: Michael J. Fox Foundation
NAMASTE: The Spirit within me honors the Spirit within you.
PD: Parkinson’s Disease
PDSG: Parkinson’s Support Group(s)
PMD: PARKINSON & Movement Disorder Alliance
PSP: Progressive Supranuclear Palsy.
P.J.: Phyllis – my wife: SWOMBO (She-Who-Must-Be-Obeyed) A contributor and #1 editor.
PT: Personal trainer Tresha, including daily in-home exercise assignments for PD
RWA: Romance Writers of America
TAODW: The Art of Dying Well–
TCF: The Compassionate Friends (For parents who have experienced the death of a child or sibling.)
WIP: Work in Progress (Awakening) or (32º North) Title undecided. Writing is my vacation!
YISKA: Navajo for Darkness has passed. (Also the name of a Navajo Border Collie who barks in Navajo!)
11.25.19: So many reasons to be thankful. One wonders if the actions are appreciated. Then we get a letter from our granddaughter like this:
The only reason I got through college was because you fed me so many books when I was little.
Love you, Bekah.
Yes. Many reasons for giving thanks.
November 26.19: 0530: 52º and windy. 0900: I finally got MM (out 24-hours late). We walked 90% of Park Place Mall this morning. We had breakfast at Charlie’s in the Food Court. Then, we looked over the posters of movies. We would like to see A Beautiful Day in the Neighborhood. We would also like to see the new version of Midway – I took Joe to the first production in 1976. It will be interesting to see what changes are in the film. I already know the ending: We won, of course. (Good luck helped us in that battle.) Then, there is also Ford vs. Ferrari.
From: Sam McClung: You asked in MM if I ever made it to the Keck telescope. My Uncle David was on the Board of Directors, so one year my parents arranged with him a family tour including behind the scenes. Very impressive (and cold!). I have been to Mauna Kea at least three times and the visitor center at 9000 feet several other times.
SET: Impressive! “Thou shalt not envy thy friend’s visit to Mauna Kea.”
Two more prompts from Marilyn: (Remember: no more than 500 words.)
- The first and second weren’t near as bad as being bucked by a mean bronc, but the third wave nearly took him under for good.
- Dina looked into the pasture, then looked again, and her eyes grew wide.
“Grandad, Grandad,” she shouted. “Come here, hurry!”
11.27.19: 0500: PT with Tresha stretching for me. The same for Phyllis. Later, I helped Phyllis with the roasting of fresh garlic. Joe and Ethan stopped by for a few minutes. Joe gave his approval of the way we were preparing the garlic. Returning from the bank to the fragrance of roasted garlic in our home was a delightful experience!
1330: I had severe issues with my computer. I couldn’t access my online bank. This happened yesterday. I even shut off my computer, let everything go down, came in the next morning, turned on the computer, but nothing worked for the bank. Everything else was no problem. I just naturally assumed that it was my fault and began worrying about what I did wrong that blanked out the whole account. I finally gave up and called the bank. It wasn’t my fault! The bank changed its format. I would imagine a lot of people had that problem. Maybe they got a message that I didn’t get. After 45-minutes of patient explanations by a technician, everything is up and running again. What a relief!
We watched the continued eliminations of contestants to the top ten in The Voice and the final episode of Season 6 of Doc Martin. Martin finally admitted that he was married: “She’s my patient, …and my wife.”
We received text messages from Joe, Bekah, and Rachael, saying that everybody was safe at home sleeping. Bekah flew in from Chicago, arriving at 0130. Rachael managed to beat the snowstorm in Flagstaff and arrived sometime in the evening. Joe was up for all of the transporting from the airport and a sudden emergency to take Ethan to the hospital for kidney stone blasting. Ethan is drinking a gallon of water daily to flush his system. Joe is taking many naps this afternoon.
2000: I finally got some light reading done. Kristine Kathryn Rusch’s Free Fiction Monday: Once on the Blue Moon. (Not to be confused with once in a Blue Moon.) The convenient thing about short stories is I can read them in one sitting. By late evening I’m not likely to have too many interruptions. I was able to finish all 26 pages before Swombo had the bedroom light turned off. Neither of us slept well. We thought it was going to be a heavy rainstorm, but we only had a slight splattering of drops around 2000.
This should be a joyous day! 15 members of the family will meet at the Shulick’s for dinner. PJ and I are bringing stirfry with fresh, roasted garlic.
11.29.19: We did not participate in Black Friday. Swombo awoke when she was through sleeping (0930!). I drove her to Ida’s for a haircut. We passed parking lots that were full of cars waiting in line just to find an empty space. I took her to lunch at Culver’s. We had leftovers for dinner, read and relaxed, and went to bed early.
LETTERS From Marilyn Hoover:
I really think that you two are in your twenties! You are certainly blessed living life to the fullest. Have a wonderful Thanksgiving with family. Thanksgiving would have been our 22nd anniversary, and I’ve decided to just be thankful for those wonderful years the Lord blessed us with.
SET: Swombo says: “He has an eighty-five-year-old body and a twelve-year-old mind!”
11.30.19: 0530: Happy Birthday to Harold Slocum! This would have been his 115th Birthday. He saw 102 of them! We miss you.
Cold 46º this morning. We had one inch of rain last night.
REMEMBER Rabbit Day tomorrow.
The Compassionate Friends Worldwide Candle Lighting unites family and friends around the globe in lighting candles for one hour to honor the memories of the sons, daughters, brothers, sisters, and grandchildren who left too soon. As candles are lit at 7:00 pm local time, hundreds of thousands of persons commemorate and honor the memory of all children gone too soon.
Now believed to be the most extensive mass candle lighting on the globe, the 23rd annual Worldwide Candle Lighting, a gift to the bereavement community from The Compassionate Friends, creates a virtual 24-hour wave of light as it moves from time zone to time zone. TCF’s WCL started in the United States in 1997 as a small internet observance but has since swelled in numbers as word has spread throughout the world of the remembrance. Hundreds of formal candle lighting events are held, and thousands of informal candle lightings are conducted in homes as families gather in quiet memory of children who have died, but will never be forgotten.
Every year you are invited to post a message in the Remembrance Book, which will be available during the event at TCF’s national website. The Remembrance Book will be open to posting a message Sunday, December 1st, through Monday, December 9th. Photos can be posted on our Worldwide Candle Lighting Facebook page.
Our Tucson Chapter will participate in the National Candle Lighting in Remembrance of all our Children at the Children’s Memorial Park off Oracle Rd. on Sunday, December 8, starting at 7pm. Come early and bring a jacket! You can also bring a photo or other memento to display.
The Compassionate Friends National:
Online Support information is available on the National Compassionate Friends Website at www.compassionatefriends.org. There are over 26 private Facebook groups available for parents, grandparents, and siblings. There are also “virtual chapters” through an online support community (live chats).
Visit www.compassionatefriends.org/find-support/online-communities/online-support/ for more information and to register.
Remembrance Cards In order to receive remembrance cards during your loved one’s birthday month and the death anniversary month, you must individually sign-up, with your complete information, for the memorial book located on the national website found under the “Find Support” tab after clicking on “To The Newly Bereaved” (https://www.compassionatefriends.org/find-support/to-the-newly-bereaved/).