(Like so many pieces of laundry, morning thoughts at.)
October 28-31, 2019
Living with Parkinson’s
Sam & Phyllis Turner ©2019
ALOHA: Adult Loss of Hearing Association
APDA: American Parkinson Disease Association
BSC: Bristol Stool Chart
CH: Cynthia Holmes, Ph.D. Neurology
CPAP: Continuous Positive Airway Pressure mask (for Sleep Apnea).
DBS: Deep Brain Stimulation (much improved since Michael J. Fox!)
HEH: Happily Ever After!
HOH: Hard of Hearing
HS: Harvey Stanbrough Pro-writer and mentor (http://harveystanbrough.com)
IBS: Irritable Bowel Syndrome (often associated with PD)
LVST: Lee Silverman Voice Technique) has been an effective way to treat the symptoms of impaired voice and swallowing (a PD problem for some) …
MJFF: Michael J. Fox Foundation
NAMASTE: The Spirit within me honors the Spirit within you.
PD: Parkinson’s Disease
PDSG: Parkinson’s Support Group(s)
PMD: PARKINSON & Movement Disorder Alliance
PSP: Progressive Supranuclear Palsy.
P.J.: Phyllis – my wife: SWOMBO (She-Who-Must-Be-Obeyed) A contributor and #1 editor.
PT: Personal trainer Tresha, including daily in-home exercise assignments for PD
RWA: Romance Writers of America
TAODW: The Art of Dying Well-A practical Guide to a Good End of Life, by Katy Butler
TCF: The Compassionate Friends (For parents who have experienced the death of a child or sibling.)
WIP: Work in Progress (Awakening) or (32º North) Title undecided. Writing is my vacation!
YISKA: Navajo for Darkness has passed. (Also the name of a Navajo Border Collie who barks in Navajo!)
October 28: (short week this time): We went to Eclectic for dinner. When we finished, we walked about twenty yards north and checked out a new (for us) restaurant: Renee’s Organic Oven. Someone told us about this, but we don’t remember who. Do you know? We took a menu home. We’ll go there some evening.
WE GET LETTERS:
By the way: Besides Quail Run Writers, I have some
teachers/mentors who keep me inspired. One of them is Harvey Stanbrough. Check out his Author Website, below. I’ve read all of his Wes Crowley series. If you like westerns, give these a read. If you want poetry, he is well represented in that genre. He has a great journal, too.
“Another good one, Sam, and a great essay by “Sam the younger.”
h * * *
I only write when I’m inspired, so I see to it that I’m inspired every morning at 3 a.m.
http://harveystanbrough.com — my author website
http://hestanbrough.com — my instructive Daily Journal
10.28.19: 0515: Another great day for writing. I published Maytag Moments this morning. (I meant to do it last night, but I wanted PJ to give it one more check. By the time she finished – only two words needed changing – we were too tired. I sent it out this morning.
0900: Cascade Writing Group. I was so happy to see Beverly return. She is a spark of joy.
1100: Spent two hours cleaning my desk and storing my watercolor material. I’m not painting these days. Maybe again, someday.
1300: Geeks2You (Randy) worked with us and reduced our stress level by at least 80%.
1600: Sorting files on the computer. Dumping a few.
1700: Dinner, news, and DWTS recorded and The Voice tomorrow. We alternate recordings. It’s PJ’s choice.
10.29.19: 0630: Only 50º this morning. I have the heater on and am drinking hot blueberry tea. Not my favorite, but I came across it in the back of the cupboard and thought I’d use it. I’m guessing that it is about three or four years old. But the packages are in a tightly sealed container.
10.30.19: WE GET LETTERS:
From Jeanne Glasgow
I learned more about life with Parkinson’s reading in Sam McClung’s journal entry, describing his experience. Very interesting. Hearing about the readings at Quail is next best to being there. I am sorry to hear of Phyllis’s emergency trip with those hot medics, but glad to hear the tests were all okay.
Thanks, Jeanne. I figured I’d get a comment from you. Yes. Phyllis is healthy enough that she is giving me directions again. SET
10.30.19: 0500: The temperature is 48º this morning. I know: You folks who live in the Midwest and east think that’s warm. And for the disaster areas in California, PJ and I send our prayers. Nancy H., Jerry & Margot, MaryEllen W., Kara & Marty
C., Lucy, Betty & Howard B.,Laura V., Sarah C. Are you folks, OK?
0930: Finished exercises with Tresha. When we got home, Solar Edge was installing a new inverter for our roof panels. It takes 12 to 24 hours for them to activate to full power.
1115: PJ is ready for her Red Hat Halloween meeting at the Ragazzi Restaurant in Green Valley. She won most Original! (See group picture on MM5.)
Concerning DRAGON: The microphone that came in the Dragon kit developed an electrical short. On 10.28.19: My GEEK2YOU specialist (Randy) found that problem.
10.29.19 I have a new mic ( a Logitech H540 computer headset, noise-canceling, on-ear controls, and padded for comfort).
Thinking I could follow the directions on the computer program that Dragon had, I immediately tried to install it. Big mistake.
The next thing I knew, I was on the phone with somebody in the Philippines for technical help. Number one: I couldn’t understand him. Number two: My CaptionCall screen, which prints out everything people say on the other end, announced that the speaker was inaudible. I spent an hour trying to communicate with him.
(The Philippine contact said he couldn’t help me until I found the serial number on the sleeve of the program that I purchased from DRAGON a year ago. I said that I didn’t understand why, if they had my address, my phone number, and my account in front of them, why they needed to have the serial number of the program again.
I asked to talk to the supervisor. Guess what? The supervisor was in the Philippines, also. My CaptionCall phone, which can understand most speakers with no problem, stated that the speaker was inaudible. I gave up and said, “Thank you, but I’ll work on it at home.”
“Working on it at home” means calling our daughter Julie and asking for help. (I could have spoken with her son, our grandson Zachary, who at 16 years old, might have been able to explain it to me. Even his sister, Sabrina, who is 13, could have told me.) However, it was late. They had school the next day.
In a panic, I texted our daughter Julie, who calmed me down. Her university degree in computer analysis paid off once again.
“Dad,” she said. “Shut it off and reboot the program and let the program find your new microphone.” (I didn’t know my computer could do this.)
I didn’t just shut off the program; I shut off the whole machine.
I said to PJ: “I’m not going to stay up and worry about this for another hour or so. I’ll do it in the morning.”
Today, (10.30.19), I kept putting it off because I was afraid I’d screw everything up. Can you tell that computer operations stress me out?
Finally,today, at 1325, I got up the courage to open the Dragon program. And guess what?
It found the new microphone immediately. I didn’t have to type in a serial number for the Dragon program.
It works! My stress level has just dropped from a 10 down to about two. I followed Julie’s directions.
I typed pages 3 and 4 using DRAGON. It took almost two hours because I forget to speak the punctuation. I’ve been out of practice for four weeks.
I just got a text that PJ is almost home from her red hat luncheon. I hope she brought leftovers.
Sara of Sarandipty Travels completes her 500-mile solo walking Pilgrimage to Santiago, Spain.
10.30.19: PARKINSON’S (continued). I just remembered: at PT, Tresha had me balancing with my eyes closed while standing with my feet, one slightly in front of the other. Then she taps (pushes) me on different body locations to see how I quickly I respond, catching my balance with eyes still closed. Some days I can do it with no problem. I didn’t think I did well this morning, but she said I didn’t fall. That’s good! It’s small accomplishments like that which are incouraging.
As always, a very informative journal. Thank you for sharing it . . . for me it’s a valuable contribution to my understanding to some degree at least of the daily challenges you face in coping with PD.
Thanks, Len. The progression of PD is relative slow (for me, anyway) and hardly noticeable. I hope you were able to pull up the two sites of the High School Band Days. They certainly don’t look like our 36-piece marching band at W.A., do they?
10.30.19:I know you have been dying to know about PJ’s Red Hat group. You can see just how serious they are. Queen Betty is on the right. I’m sure you recognize the Cat in the Hat.
10.31.19: 42º @0700. We see our Primary Care doctor this morning about last Wednesday’s episode. It could have been a TIA. (Transient ischemic attack or mini-stroke.) We’ll know after the meeting. We have a few more errands after that. Maybe, by afternoon, I can go to the club and shoot.
REMEMBER RABBIT DAY ON FRIDAY!
PS: Plan Ahead:
The Compassionate Friends announce WORLDWIDE CANDLE LIGHTING. Join us on December 8, 2019, at 7:00 PM, at the Children’s Memorial Park off Oracle Rd.
Now believed to be the most massive candle lighting on the globe, the 23rd annual worldwide is a gift to the community from The Compassionate Friends. It creates a virtual 24-hour wave of light as it moves from time zone to time zone around the earth. There will be more information in the next Maytag Moments.We were at the first one. It doesn’t seem possible that our son, Robert Eric Turner, has been gone twenty-three years. He would be forty-six years, now. We burn our candles at home. PJ has difficulty standing for more than fifteen minutes.