(Like so many pieces of laundry, morning thoughts aren’t usually organized.)
Living with Parkinson’s
Sam & Phyllis Turner ©2019
Codes: At the end of this letter. Is that better? Or do you still want to begin at the top? Send me a note one word: top or bottom.
ALOHA: Adult Loss of Hearing Association
APDA: American Parkinson Disease Association
BSC: Bristol Stool Chart
CH: Cynthia Holmes, Ph.D. Neurology
CPAP: Continuous Positive Airway Pressure mask (for Sleep Apnea).
DBS: Deep Brain Stimulation (much improved since Michael J. Fox!)
HEH: Happily Ever After!
HOH: Hard of Hearing
HS: Harvey Stanbrough Pro-writer and mentor (http://harveystanbrough.com)
IBS: Irritable Bowel Syndrome (often associated with PD)
LVST: Lee Silverman Voice Technique) has been an effective way to treat the symptoms of impaired voice and swallowing (a PD problem for some) …
MJFF: Michael J. Fox Foundation
NAMASTE: The Spirit within me honors the Spirit within you.
PSG: Parkinson’s Support Group(s)
PD: Parkinson’s Disease
PMD: PARKINSON & Movement Disorder Alliance
P.J.: Phyllis – my wife: SWOMBO (She-Who-Must-Be-Obeyed) A contributor and #1 editor.
PT: Personal trainer Tresha, including daily in-home exercise assignments for PD
RWA: Romance Writers of America
TAODW: The Art of Dying Well-A practical Guide to a Good End of Life, by Katy Butler
TCF: The Compassionate Friends (For parents who have experienced the death of a child or sibling.)
WIP: Work in Progress (Hiker Man) or (32º North) Title undecided. Writing is my vacation!
YISKA: Navajo for Darkness has passed. (Also the name of a Navajo Border Collie who barks in Navajo!)
09.22.19: 1600: PRACTICED shooting. Broke an arrow. Don’t know how: it didn’t hit the wall; it bounced off the target. Then, my bow had a malfunction in the compound string winding. I’ll get it fixed tomorrow after class.
With all this happening I decided it was time for us to go to Culver’s for dinner. It’s been a week since we’ve been there. Phyllis ordered a chicken sandwich without the bread and no tomatoes. It was like a chicken sandwich with nothing but chicken. I had the same.
We watched the rest of episode three of the History of Country Music. This covers the 40s and the 50s. We’re beginning to recognize some of the songs. It rained just a little bit. We’re supposed to get more rain Monday, Tuesday, and Wednesday.
* * *
09.23.19: 0530: WE GET LETTERS:
I thought I would like the codes at the end better, but after reading your email, I want them in front.
I was able to access the webinar, thanks for reminding me.
I thought I had found a vocal therapist, but I have to keep looking do you know of any? Many of the ones I found were that LVST program four days a week for four weeks which is too much for my body to handle.
You have the word SET throughout your email. What does this mean? I even googled it and was not able to find it. (Samuel Edmund Turner)
Take care. I just started getting better after a week of flu or something.
* * *
How nice! I will have what Bekah is slurping, looks delish!!
Hugs ♥️ Ana F. Yes. Me too! SET
This picture (last issue) is a hit! She is the granddaughter who now lives in Chicago working in a children’s hospital. How about a picture of Elise? Or better: the two of you for the record. Gpa Books.
FIRST DAY OF FALL. The first time that it’s cool enough to sit on the Brett Bench. PJ and I sat there last evening and watched the sunset. We are due to get rain today and tomorrow. It’s supposed to be in the 80s.
The birds are just waiting for me to finish so they can come down and feed off of their seed block. We got a hot pepper cylinder to see if it would discourage the squirrels. So far, they seem to be enjoying it. I haven’t been able to get a shot at (I mean of )them because by the time I get out there, they see me coming and are gone.
1600: Clouds are nudging their way in the West and East for a deluge (maybe). We hope. I have Archery League this evening. I received my Michael J. Fox DNA kit this afternoon. I’ll spit in it before I have dinner. League: I only shot 175/300 and one +.(The + is proof that it is possible to hit a bull’s eye.)
09.24.19: Quail Run Writers this morning.
Besides the snacks, we had fun sharing our favorite shows and/or books.
Sam: The Voice; Ken Burns the History of Country Music.
Flo: Carol Burnett re-runs; Bev: The Profit by Kahlil Gibran (Me too). And Channel 18 for re-runs. She has an antenna, and her channels are different.
Sharon: The Big Bang.
Pauletta:Amsterdam -an ideal for what a hospital should be; and This Is Us. PJ and I have never watched TIU, but we watched it this evening. Gripping, fast-moving with three (or was it four?) stories going on at once. I’ll record the series. Thanks for the suggestion, Pauletta.
PJ: The Outlander series on Stars.
Flo, Sharon, and PJ at the table
Finally, we shared our stories:
Pauletta: The Owl who lived on her patio.
PJ: The life story of Jerry Slocum (PJ’s older brother) who donated his 30,000 mechanical puzzles to Indiana University Libby Library.
Sharon: A children’s story (written and illustrated by Sharon): A Royal Family Solves
A Royal Problem – We encouraged her to self-publish it.
Bev: Maggie and Marissa is concluded.
Flo: A Peanut Butter Sandwich: A true love story on one page.
Sam: Hiker-Man regains his memory, ending Chapter 3.
In October, we’ll meet at Flo’s in Rita Ranch.
For evening dinner, PJ fixed potatoes, asparagus, and chicken. We watched THE VOICE and the conclusion of Dancing With The Stars.
09.25.19:0730: Training with Tresha.
1300: Mohs Procedure with Dr. Senait Dyson, who is on my Parkinson’s Team of doctors. I searched, unsuccessfully, for the book Mohs Surgery for Dummies. I knew Dr. Dyson would be anxious to receive it. Instead, I Googled and found a three-page summary which I thought she might be able to use. Senait was appreciative. We’ve known Dr. Dyson since she was a Candy Striper (This might be an exaggeration.). She’s moved her office several times (2 or 3?). She can run, but she can’t hide.
Here’s the result of the DBS er…no…not Deep Brain Stimulation. She didn’t go that deep this time. No side effects at this point in post-surgery. Well—not if you don’t count that my eyes cross now and then. Not as bad as the two nose (Mohs) procedures a few years ago.
09.26.19: We took a walk in Park Place Mall this morning to work out the stretched hamstring in my leg. I never have been able to find out that lady’s secret. For some reason, SWOMBO won’t let me research that question. It’s probably too complicated for my brain; especially now with this new surgery.
We worked so hard today that I took SWOMBO out to dinner at Culver’s Tucson. I got to meet boss Kaytie’s husband, who drives a cement truck. When I was a youngster I used to think cement trucks, road graders, and dump trucks were the best toys to play with. (Plus my electric train, of course.) We’ve been going there more frequently. They have this deal where one can get free frozen custard, and well…you know the rest of that story.
09.27.19: 0800: I met with the coffee group. I haven’t had coffee with them for at least two years. (I had water instead of coffee.) We stayed home for the rest of the day. This evening, we watched the University basketball team play against each other opening the season. I did not go to the archery league. I may have pushed myself a little too much after the Mohs procedure.
09.28.19: 0930: RWA today – Subject: Marketing. I couldn’t write fast enough. She works at Arizona State University as (you guessed it) a professional marketer. I got home at about 1500 and just had to rest. We watched another episode of THE HISTORY OF COUNTRY MUSIC and the first half of the U of A football game and had to sleep. UofA 20. UCLA 17. Must have been a good game.
09.29.19: Children’s time at Church. Always interesting for this adult, anyway.
1200:Visited Julie to catch up on events. Next Saturday, she’ll transport us to the Boy Scouts steak (!) dinner. We finished The History of Country Music this evening.
09.30.19: 0800: I had an appointment with my podiatrist requiring surgery on my left foot – big toe. This may have something to do with my left leg, which may have something to do with the pain in that leg. We’ll see. Apparently I was favoring that toe. You don’t need a picture of it. You don’t need to know how deep the doctor cut into my toe. The result may have contributed to my misalignment with my left leg in archery which may be the reason I’ve been shooting erratically the last four weeks. I can’t stand on it very long for another two or three days. I’m using ice packs now. Starting tomorrow, I’ll remove the bandage and soak it in Epsom salts. I may be able to get back to archery practice by Friday. Good to know the possible cause. My leg feels fine today. My toe doesn’t feel that great.
Where did this month go? Don’t forget to say Rabbit before you get out of bed tomorrow.